Dear Grace and William --

The week began like any other -- the usual -- eating, napping, going places (parks, museum, a new place - the Animal Farm in Gray), and ended -- with congestion, coughing, and lack of sleep.  Grace, you began feeling poorly Thursday and William, you began late Friday night.  By Sunday, Grace, you were over the hump and seeming to feel just a bit better.  Mommy, Dada and William still have this terrible cold as we write Sunday night.  Temps were slightly elevated, sneezing all the time and on everything, and runny noses -- ugh!  We will need to watch out for any issues with your ears and ask Dr Steve when we see him soon about whether you both will need another year of Synagis.  

Dada accessed your port, William, all week and did great!  And you are not as squirmy, it seems maybe just a tad bit curious about the port, especially if  we get the right amount of Emla cream on your skin so accessing is not painful.  Your Factor VIII dose was upped as your 48-hour-after-prophy-test showed the level as your normal, less than one percent.  Now you are getting 60 units (IU) per kg or for those of us who are metric-challenged, approximately 750 IU.  Because of the way Factor is dosed, you are getting closer to 850 units.  It does not help that you keep growing and now weigh 26 pounds!  

The temps most of the week were beautiful -- like June weather.  Overnight, the temps were cool, like fall weather but during the day, it was sunny, breezy, and in the high 60s and low 70s.  

Mommy cleaned out your closets of shorts and clothes that keep shrinking.  It is hard to believe that you both wear 18 month outfits, although we have begun to put you, William, in  24 month outfits as well.  

All our love,

Dada and Mommy

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