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Babies - Day 21 - August 5, 2004 8:45 PM

As you could see from yesterday's picture, David and Victoria had a delightful dinner out and Susan (Victoria's Mom) had a yummy scallop dinner at the Grey Gull in Wells. William and Grace ate and grew, now to 4lbs, 5oz (William) and 4lbs, 2oz (Grace). Harry watched CNN -- he's becoming a political junkie -- and Sarah remains a recluse! We've had a few requests for how the parents are doing so we'll write a bit more about us (although we think it's much more interesting to talk about our kids -- we cannot believe we are writing this!).

Victoria revels in just holding the babies and watching them mostly sleep. When they are breastfeeding, it is different -- she is working (seems like always working between breastfeeding and pumping). Susan keeps thanking our lucky stars (really thanking God) for our many good fortunes. David seems to be slowly finding the balance with juggling work, home and the hospital -- and reaching the conclusion there is not enough hours in the day. We are sure Victoria will be struggling with this issue, too, when she prepares and gets back to the world of work!

We have been slowly getting rid of the "stuff" in the basement, trying to lessen the complications in our lives. David has been leading this charge with Victoria creating piles -- ooooh, how she hates piles! Our hope is to build out the basement for an in-home office, playroom (someday soon), perhaps another bedroom for visiting relatives. All this, plus worrying about the kids, deadheading the flowers in the gardens, laundry, keeping up with returning calls, writing thank you notes and reviewing applications for part-time nanny help. Victoria has seen the worry in David in the past three weeks. He is so easy-going; however the past three weeks have not been easy-going weeks so David is seemingly more like Victoria in the worry department these days. It is so obvious how much he loves the rugrats -- he coos, tells them made-up and interesting stories, and we all laugh. Laughing has been a good release for us all.

We continue to be very touched by the guest book entries, both public and private, and consider ourselves incredibly lucky to have such wonderful and interesting friends and family willing to share their thoughts and feelings. And the cards ... gifts ... flowers from you. Thank you so much for thinking and reaching out to us. We like to feel connected to you and what is going on in your worlds. Just yesterday, Ellen sent an email with a picture of her daughter -- BIG blue eyes and reddish hair like her Mom -- very cute little girl!

Today, we met William and Grace's evening (from the 4th) and day nurses -- Sheila and Lisa -- and of course, the kids remember Jane (from the NICU) who was their nurse in between Sheila and Lisa. Sheila stuck around a few hours longer than her normal shift and Lisa was brought down from the PICU. Lisa said how impressed she was with us caring for the kids -- it was music to our ears! You see, Lee, both Sues and Terri are on vacation -- most of the normal CCN crew. I think only Kathy is the normal crew working today. She has been caring for the other two sets of twins in the CCN -- be careful drinking the water around here! Multiples are everywhere!

We came into the CCN early today to see Dr Steve and get an update live-and-in-person. He, though, changed his plans and examined the babes around 11am. We are glad to have arrived early to get the breastfeedings in early (William remains more interested presently than Grace). Dr Anne Rossi, though, visited us, William's pediatric hematologist. She is very friendly and inviting and we think we will enjoy working with her very much -- and has vast knowledge. Definitely a plus with a disorder as rare in hemophilia. It was nice to have Susan with us, as she was able to answer a few questions about Victoria's Dad's (William J) experiences with hemophilia that Victoria did not know. Generally, the level/issues with the prior generation (William J) will be very similar for our William K.

Once the babes come home and begin going to Dr Steve's office, Grace will be tested for hemophilia (carrier status and level) and also her Factor V Leiden status (something Victoria learned she has recently); William will be tested for the Leiden too. We believe that Victoria's Dad was positive for the Leiden, which may have contributed to him having less bleeds than most severe hemophiliacs. We are praying for the same for William, as the Leiden can counter-balance some of the symptoms of hemophilia. Regardless, though, the technologies, medicines, knowledge of the medical community, and attitudes are so different today than when Victoria's Dad was born -- and Maine has great medical and people support systems in the Maine Children's Cancer Program.

David and Victoria want to get the entire family involved at an early age in swimming, a great form of exercise for us all. Even Victoria's Mom swims at the Y in Fresno and the babes' cousin, August, swims with his parents regularly in Connecticut and now in New Hampshire, where they recently moved. We plan, though, to wait just a bit -- perhaps once the kids are out of diapers!

For those in Maine, yesterday in the Portland Press Herald Community News section has the babes' birth announcement! They are now official!

Off to relax ... with love,

David, Victoria, Grace and William

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Victoria L. Kuhn & David K. Addison - Falmouth, Maine